Sorry I haven't updated before now but things have really been busy. Leah was discharged from the hospital Friday! I smiled all the way home!! It is still unbelievable to me that we are on the other side of her surgery! She's doing really well but her sleep schedule is all mixed up. She barely got any sleep at all today and is overtired! In fact, she is sitting in my lap right now; wide awake at 12:30am!
As you can see in her new avatar picture (small picture in the top right corner) her swelling has come down a lot and she is feeling much better. That picture was taken today! I plan on adding the rest of her hospital details and adding more pictures to her slideshow when time permits. Please pray Leah starts sleeping better soon...I am exhausted!
About Me
Leah ~ 8.5 months old
Smiling at her Daddy ~ notice the tooth on the bottom!
Some people say I was born with a funny-shaped head. I'd like to think it's where God kissed me instead.
Leah's Surgery Slideshow
Leah ~ 5 Days Post Op!!
~Leah's journey with Right Coronal Craniosynostosis.
~Leah underwent "Endoscopic-assisted Cranial Vault Reconstruction surgery" on April 14, 2008.
This blog will share our story, updates and photos with family, friends and others that might be embarking on the "cranio journey" with their little ones.
Feel free to email me if you have any questions. Things are scary if you are facing a new diagnosis, and I hope Leah's journey will help to ease those fears.
~Leah underwent "Endoscopic-assisted Cranial Vault Reconstruction surgery" on April 14, 2008.
This blog will share our story, updates and photos with family, friends and others that might be embarking on the "cranio journey" with their little ones.
Feel free to email me if you have any questions. Things are scary if you are facing a new diagnosis, and I hope Leah's journey will help to ease those fears.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans for a hope and a future. Jeremiah 29:11
For we are God's workmanship, created in Christ Jesus to do good works, which God prepared in advance for us to do. Ephesians 2:10
Links
- Cranio Kids ~ My online cranio support group!
- Joe DiMaggio Children's Hospital - Where Leah had her surgery
- Conine Clubhouse - Where Ken slept during Leah's hospitalization
- Jorge Posoda Foundation - His son diagnosed with craniosynostosis when he was 10 days old
- Jorge Posoda video on You Tube
- CAPPS kids - This site is a great place for craniosynostosis information and support
- Children's Craniofacial Association
Know that the Lord is God. It is he who made us, and we are his. Psalm 100:3
And we know that in ALL things God works for the good of those who love him. Romans 8:28
For the Lord is good and his love endures forever; his faithfulness continues through all generations. Psalm 100:5
4 comments:
Dear Ones, I was so glad to hear of the successful surgery. I am really looking forward to meeting my new great niece in July.
Wow! She looks fantastic! And so happy! :)
Praise God for His grace and love. I am so excited for you and looking forward to seeing her in person!! Dr G
Our daughter Grace was diagnosed with Craniosynostosis recently and will undergo surgery soon. We're not sure when that will be. We're meeting with the neurosurgeon on Tuesday Nov. 18th,2008 to discuss her treatment. Thank you for your very moving slideshow to help understand what we'll face. God bless!
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