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About Me
Leah ~ 8.5 months old
Smiling at her Daddy ~ notice the tooth on the bottom!
Some people say I was born with a funny-shaped head. I'd like to think it's where God kissed me instead.
Leah's Surgery Slideshow
Leah ~ 5 Days Post Op!!
~Leah's journey with Right Coronal Craniosynostosis.
~Leah underwent "Endoscopic-assisted Cranial Vault Reconstruction surgery" on April 14, 2008.
This blog will share our story, updates and photos with family, friends and others that might be embarking on the "cranio journey" with their little ones.
Feel free to email me if you have any questions. Things are scary if you are facing a new diagnosis, and I hope Leah's journey will help to ease those fears.
~Leah underwent "Endoscopic-assisted Cranial Vault Reconstruction surgery" on April 14, 2008.
This blog will share our story, updates and photos with family, friends and others that might be embarking on the "cranio journey" with their little ones.
Feel free to email me if you have any questions. Things are scary if you are facing a new diagnosis, and I hope Leah's journey will help to ease those fears.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans for a hope and a future. Jeremiah 29:11
For we are God's workmanship, created in Christ Jesus to do good works, which God prepared in advance for us to do. Ephesians 2:10
Links
- Cranio Kids ~ My online cranio support group!
- Joe DiMaggio Children's Hospital - Where Leah had her surgery
- Conine Clubhouse - Where Ken slept during Leah's hospitalization
- Jorge Posoda Foundation - His son diagnosed with craniosynostosis when he was 10 days old
- Jorge Posoda video on You Tube
- CAPPS kids - This site is a great place for craniosynostosis information and support
- Children's Craniofacial Association
Know that the Lord is God. It is he who made us, and we are his. Psalm 100:3
And we know that in ALL things God works for the good of those who love him. Romans 8:28
For the Lord is good and his love endures forever; his faithfulness continues through all generations. Psalm 100:5
9 comments:
Denise, Your blog is beautiful. We read it every day. Your family is in our prayers.
Love, Barri & Jim
Denise,
I have watched the slideshow many times. Thank you for sharing the pictures. They certainly tell Leah's story and show what a strong little baby she is. My heart breaks and rejoices at the same time when I see the pictures. Knowing she is perfect but seeing the journey she has taken--God has certainly taken care of her! I can't wait to see all of you!
Love, Tammy
Wow, what an Angel you have! Thank you for sharing as it just makes me love our Lord more and more. Stay strong because as we know - If God brings you to it, He will bring you through it.
Denise, your family is in my Prayers.
Love from Judy (A sister in Christ from Cape Cod, MA)
Great slide show Denise...I know that Leah will be glad you've documented this whole experience so thoroughly. Have a safe trip home today.
Love,
Mike
Okay, bring out the kleenex ! They are tears of joy knowing that Leah's going to be okay. She's a little fighter.
Love,
Daisy Kropp
Tammy and Ken,
You are a testimony of what it means to have the peace that surpasses all understanding. You are in my prayers!
Georgina
Thank you for sharing your precious pictures with us. Your baby is just beautiful! I love you guys and I am so blessed to have you in our lives!
me and leah watch it and leah said mommy baby she did not know it was her
nice slideshow
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