About Me
Leah ~ 8.5 months old
Smiling at her Daddy ~ notice the tooth on the bottom!
Some people say I was born with a funny-shaped head. I'd like to think it's where God kissed me instead.
Leah's Surgery Slideshow
Leah ~ 5 Days Post Op!!
~Leah's journey with Right Coronal Craniosynostosis.
~Leah underwent "Endoscopic-assisted Cranial Vault Reconstruction surgery" on April 14, 2008.
This blog will share our story, updates and photos with family, friends and others that might be embarking on the "cranio journey" with their little ones.
Feel free to email me if you have any questions. Things are scary if you are facing a new diagnosis, and I hope Leah's journey will help to ease those fears.
~Leah underwent "Endoscopic-assisted Cranial Vault Reconstruction surgery" on April 14, 2008.
This blog will share our story, updates and photos with family, friends and others that might be embarking on the "cranio journey" with their little ones.
Feel free to email me if you have any questions. Things are scary if you are facing a new diagnosis, and I hope Leah's journey will help to ease those fears.
For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans for a hope and a future. Jeremiah 29:11
For we are God's workmanship, created in Christ Jesus to do good works, which God prepared in advance for us to do. Ephesians 2:10
Links
- Cranio Kids ~ My online cranio support group!
- Joe DiMaggio Children's Hospital - Where Leah had her surgery
- Conine Clubhouse - Where Ken slept during Leah's hospitalization
- Jorge Posoda Foundation - His son diagnosed with craniosynostosis when he was 10 days old
- Jorge Posoda video on You Tube
- CAPPS kids - This site is a great place for craniosynostosis information and support
- Children's Craniofacial Association
Blog Archive
Know that the Lord is God. It is he who made us, and we are his. Psalm 100:3
And we know that in ALL things God works for the good of those who love him. Romans 8:28
For the Lord is good and his love endures forever; his faithfulness continues through all generations. Psalm 100:5
3 comments:
Denise you have a great web page. I just look at it everyday. Because my son is 3 months old and has to have the surgy to. I have been nerves about it. So I watched your slide show to prepare myself for what to except. How is leah doing. How long does she have to wear her helmet for. Please email me back at sborzon422@yahoo.com
Hey Denise! Love the new pics .... especially the thumb and the skydiving! Too cute!!! Great job on the website!
So cute!
Post a Comment